DIFFICULTIES EXPERIENCED AT HOME BY PARENTS OF PRESCHOOL CHILDREN WITH AUTISM SPECTRUM DISORDER
Athanasia Tsioka, Εvrydiki Kaba, Theodoula Αdamakidou, Paraskevi Apostolara
Thursday, April 1, 2021
Publication year:
2021
Authors:
- Tsioka Athanasia, RN, Metal Health Nurse
- Kaba Εvrydiki, Associate Professor, Department of Nursing, Faculty of Health and Caring Sciences, University of West Attica, Athens, Greece
- Αdamakidou Theodoula, Assistant Professor, Department of Nursing, University of West Attica, Greece
- Apostolara Paraskevi, Lecture, Department of Nursing, Faculty of Health and Caring Sciences, University of West Attica, Athens, Greece
Keywords index:
- Autistic Spectrum Disorder
- Parental experience
- Consequences for the family
- Athome support
- Caregivers
- Homebased behaviors
Pages: 208-219
Abstract:
Introduction: The parents experience difficulties children with Autism Spectrum Disorder. Objective: The study of the
subjective experience and difficulties experienced at home by parents of preschool children diagnosed with Autistic
Spectrum Disorder (ASD). Μethod and Μaterial: Qualitative research with a sample of 6 parents, all residing in the
wider Athens area. Data collected with unstructured interviews that took place from September to December 2019.
Data analysis was based on the Grounded Theory methodology. Results: The analysis of data revealed the following
four thematic units: a) Lack/insufficiency of services, b) Need for at-home support, c) Everyday problems, d) Consequences/
difficulties. Conclusions: There is a need for a national plan of support for families raising children with ASD,
revision of therapeutic protocols, but also more effective sensitization of the whole of society.
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